The Autoimmune Registry Inc. (ARI) is pleased to announce the launch of its new website. Leveraging data from the National Institutes of Health’s All of Us Research Program, the website will help empower patients with autoimmune diseases to better understand and manage their conditions.
The All of Us Research Program aims to gather comprehensive health data from one million diverse participants across the United States, while ARI focuses on autoimmune diseases. Through the newly launched website, ARI generates disease-specific graphs for over 100 autoimmune diseases based on data from the All of Us Research Program as well as data from its own registry. These graphs provide insights into basic demographic information, top comorbidities, top medications, self-reported well-being, and socioeconomic factors for individual autoimmune diseases.
ARI was founded in 2016 with the mission to provide information about autoimmune diseases to patients. It aims to solve the information gap that existed, as insufficient resources were available to help patients understand what these diseases are, how they progress, and other considerations related to their condition.
As the first autoimmune diseases registry, ARI has modeled itself after the National Cancer Registry, which collects data on incidence, demographics, and survival rates for all types of cancer in the United States. In the same vein, ARI offers patients and families vital data that could lead to more personalized care and improved health outcomes.
Additionally, the registry engages in and supports cutting-edge research and advancements in treatment options to enable patients to make more informed choices. ARI supports various clinical trials required by the FDA for the approval of new medications and treatments. In these efforts, Patient Navigators—patients living with autoimmune diseases—provide support and advocacy for study participants.
With this new website, ARI becomes a full resource for all things autoimmune diseases. Beyond offering detailed disease profiles, the website also features query tools with data on over 100 autoimmune diseases. The registry has evolved into a centralized hub of valuable information for patients and researchers alike.
About the Autoimmune Registry
Autoimmune Registry, Inc., ARI, is a 501(c)(3) non-profit umbrella organization that provides a hub for research, statistics, and patient data on all autoimmune diseases.
Since 2016, they have operated a database for patients who suffer from any autoimmune disease. The organization’s mission is to compute prevalence statistics, accelerate diagnosis times, and advance research efforts. Through its work, ARI hopes to establish autoimmune diseases as a major class of disease, thereby increasing public awareness, drawing greater attention from healthcare providers, and garnering the funding necessary to improve treatment protocols and disease management strategies.
For more information, please visit https://www.autoimmuneregistry.org/.
Media Contact
Company Name: Autoimmune Registry Inc.
Contact Person: Ingrid He
Email: Send Email
Phone: 203-722-6938
Address:125 West Lane
City: Guilford
State: CT
Country: United States
Website: https://www.autoimmuneregistry.org/